About Us
The National Organisation of Spina Bifida Hydrocephalus Ireland (SBHI) was formed in 1968, with Kildare Branch being formed in 1983 by a small group of parents.
SBHI Kildare is operated completely by volunteers, mainly by parents and carers. We are financed almost entirely from fundraising, but also receive some private donations and occasional grants from bodies such as the HSE or National Lottery for designated projects. We have 72 members in SBHI Kildare, i.e. people with one, or (usually) both, of the conditions Spina Bifida and Hydrocephalus.
Information relating to the condition Spina Bifida can be found here.
Information relating to Hydrocephalus can be found here.
At SBHI Kildare our vision is that people with Spina Bifida and/or Hydrocephalus will participate to their fullest potential in all aspects of life. We aim to provide information, support and advice to people with Spina Bifida and/or Hydrocephalus, their parents, carers and siblings and to promote social inclusion and equality for people with Spina Bifida and/or Hydrocephalus in county Kildare
SBHI Kildare is operated completely by volunteers, mainly by parents and carers. We are financed almost entirely from fundraising, but also receive some private donations and occasional grants from bodies such as the HSE or National Lottery for designated projects. We have 72 members in SBHI Kildare, i.e. people with one, or (usually) both, of the conditions Spina Bifida and Hydrocephalus.
Information relating to the condition Spina Bifida can be found here.
Information relating to Hydrocephalus can be found here.
At SBHI Kildare our vision is that people with Spina Bifida and/or Hydrocephalus will participate to their fullest potential in all aspects of life. We aim to provide information, support and advice to people with Spina Bifida and/or Hydrocephalus, their parents, carers and siblings and to promote social inclusion and equality for people with Spina Bifida and/or Hydrocephalus in county Kildare
Services Provided
Emergency Short Term Nursing Care
SBHI Kildare have set up a home care scheme consisting of specialist on-site nursing care to support members/carers in emergency situations and wherever they may otherwise be unable to deal with personal care needs.
SBHI Kildare have set up a home care scheme consisting of specialist on-site nursing care to support members/carers in emergency situations and wherever they may otherwise be unable to deal with personal care needs.
Family Support Worker
SBHI Kildare can link Kildare branch members with a Family Support Worker.
The Family Support Worker (FSW) will visit individuals and/or families in their own home, in hospital, in school or in the work place. The nature and delivery of our service is a direct response to the needs of our members, their families and carers. We provide information, support and guidance from the time of diagnosis, which can occur during pregnancy or at the time of birth, through to adulthood.
Family Support Worker for Kildare (serviced provided by SBHI National Office)
Contact: 01 457 2329, Spina Bifida Hydrocephalus Ireland (SBHI), National Resource Centre, Old Nangor Road, Clondalkin, Dublin, D22 W5C1
SBHI Kildare can link Kildare branch members with a Family Support Worker.
The Family Support Worker (FSW) will visit individuals and/or families in their own home, in hospital, in school or in the work place. The nature and delivery of our service is a direct response to the needs of our members, their families and carers. We provide information, support and guidance from the time of diagnosis, which can occur during pregnancy or at the time of birth, through to adulthood.
Family Support Worker for Kildare (serviced provided by SBHI National Office)
Contact: 01 457 2329, Spina Bifida Hydrocephalus Ireland (SBHI), National Resource Centre, Old Nangor Road, Clondalkin, Dublin, D22 W5C1
Social Activities
Provide a range of social inclusive and accessible event for members and families, such as bowling, movie nights, Halloween, Christmas parties. This helps to give members some additional social outlets
Provide a range of social inclusive and accessible event for members and families, such as bowling, movie nights, Halloween, Christmas parties. This helps to give members some additional social outlets
Independence Training
SBHI Kildare provides the opportunity and funding for members in Kildare to attend the SHINE indepence week in conjunction with SBHI national organisation.
We also provide funding for youth/respite weekends enabling younger members and their families an opportunity to meet peers and encourage ongoing friendships.
SBHI Kildare provides the opportunity and funding for members in Kildare to attend the SHINE indepence week in conjunction with SBHI national organisation.
We also provide funding for youth/respite weekends enabling younger members and their families an opportunity to meet peers and encourage ongoing friendships.
Transport
Funding of wheelchair accessible transport for sports and social activities
Funding of wheelchair accessible transport for sports and social activities
Education/Training
Support for education/training activities, e.g. driving assessment/lessons.
Provision or access to computer equipment to enable members, who may have limited financial resources, to participate fully in the world of information and communications technology. This also can enhance members’ educational opportunities, employment prospects and social interaction outlets
Support for education/training activities, e.g. driving assessment/lessons.
Provision or access to computer equipment to enable members, who may have limited financial resources, to participate fully in the world of information and communications technology. This also can enhance members’ educational opportunities, employment prospects and social interaction outlets
Respite Care
Provision of respite care for members and/or carers. The member and Carer gets respite and possibly a change from their home surroundings and also gets an opportunity for independent living to interact with peers
Provision of respite care for members and/or carers. The member and Carer gets respite and possibly a change from their home surroundings and also gets an opportunity for independent living to interact with peers
Financial assistance
Liaising with the Family Support Worker we support members/carers in financial hardship. Many older members are unemployed and are solely dependent on Disability Allowance.
Liaising with the Family Support Worker we support members/carers in financial hardship. Many older members are unemployed and are solely dependent on Disability Allowance.
Medical information and allergy alert jewellery/band
The Branch covers cost for Members living with Spina Bifida or Hydrocephalus for Medical information and allergy alert jewellery or bands. In an emergency the simple addition of a medical id or allergy alert jewellery/band can save lives by letting medical professionals know how to treat you. They are also useful for children who are aware they have a medical condition but may be unsure of what to do when they need assistance. |